Frail Bruce Willis, 67, is seen for the first time since his dementia diagnosis was revealed, as retired actor steps out in Santa Monica
- FTD affects the lobes of the brain behind the forehead, which deal with behavior, problem-solving, planning and emotions
- Star withdrew from acting last year amid aphasia battle
- READ MORE: Die Hard star Bruce Willis has dementia, his family reveal
Bruce Willis was seen for the first time since his family revealed he had been diagnosed with frontotemporal dementia (FTD) last month – as the retired actor stepped out in Santa Monica on Thursday.
The Hollywood icon, 67, withdrew from acting last year as he began his fight with aphasia, which caused his language abilities to deteriorate – with a joint statement from his family on February 16 confirming his condition had progressed to dementia.
Willis wore a blue sweater, black joggers and a woolen hat as he grabbed coffee with two friends on the outing in California.
FTD affects the lobes of the brain behind the forehead, which deal with behavior, problem-solving, planning and emotions – with symptoms including personality changes, obsessive behavior and speaking difficulties.
The statement, from his wife Emma Heming, ex-wife Demi Moore and five daughters and posted on The Association for Frontotemporal Degeneration’s website last month read: ‘Our family wanted to start by expressing our deepest gratitude for the incredible outpouring of love, support and wonderful stories we have all received since sharing Bruce’s original diagnosis.
Hollywood icon: Bruce Willis was seen for the first time since his family revealed he had been diagnosed with frontotemporal dementia (FTD) last month – as the retired actor stepped out in Santa Monica on Thursday
Public outing: Willis wore a blue sweater, black joggers and a woolen hat as he grabbed coffee with two friends on the outing in California
‘In the spirit of that, we wanted to give you an update about our beloved husband, father and friend since we now have a deeper understanding of what he is experiencing.
‘Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD).
‘Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.
‘FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know.
‘Today there are no treatments for the disease, a reality that we hope can change in the years ahead. As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research.
‘Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately.
‘We know in our hearts that – if he could today — he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.
‘Ours is just one family with a loved one who suffers from FTD, and we encourage others facing it to seek out the wealth of information and support available through AFTD (@theaftd, theaftd.org).
Devastating: The Hollywood icon withdrew from acting last year as he began his fight with aphasia which caused his language abilities to deteriorate – with a joint statement from his family on February 16 confirming his condition had progressed to dementia
Sighting: Willis spoke to a friend as the group grabbed coffee in LA
With friends: Willis spoke with his friends as the group got drinks and snacks
Outing: The Die Hard actor made his public outing two weeks after his dementia was revealed
Actor: Willis stepped out a year after he retired from acting due to aphasia
Outing: The actor was seen with his friends as he stepped out in LA
Walk: The star walked down the street with a friend who held two hot drinks
Beloved: The actor is among the most legendary Hollywood stars
News: Bruce Willis’ family said the star’s condition had ‘progressed’. FTD affects the lobes of the brain behind the forehead, which deal with behavior, problem-solving, planning and emotions (pictured with L-R wife Emma Heming, ex-wife Demi Moore and daughters Scout, Tallulah, Mabel, Evelyn and Rumer)
The Willis/Heming family statement in full
‘As a family, we wanted to take this opportunity to thank you all for the outpouring of love and compassion for Bruce over the past ten months. Your generosity of spirit has been overwhelming, and we are tremendously grateful for it. For your kindness, and because we know you love Bruce as much as we do, we wanted to give you an update.
‘Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD). Unfortunately, challenges with communication are just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.
‘FTD is a cruel disease that many of us have never heard of and can strike anyone. For people under 60, FTD is the most common form of dementia, and because getting the diagnosis can take years, FTD is likely much more prevalent than we know. Today there are no treatments for the disease, a reality that we hope can change in the years ahead. As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research.’
Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately. We know in our hearts that – if he could today — he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.
‘Ours is just one family with a loved one who suffers from FTD, and we encourage others facing it to seek out the wealth of information and support available through AFTD (@theaftd, theaftd.org). And for those of you who have been fortunate enough to not have any personal experience with FTD, we hope that you will take the time to learn about it, and support AFTD’s mission in whatever way you can.
‘Bruce has always found joy in life – and has helped everyone he knows to do the same. It has meant the world to see that sense of care echoed back to him and to all of us. We have been so moved by the love you have all shared for our dear husband, father, and friend during this difficult time. Your continued compassion, understanding, and respect will enable us to help Bruce live as full a life as possible.’
-Emma, Demi, Rumer, Scout, Tallulah, Mabel, and Evelyn
Family: Willis and his wife Heming Willis also have two daughters, Mabel, 10, and Evelyn, eight, together
Support: Celebrities including Ireland Baldwin and Aaron Paul sent well-wishes to the actor and his family
Together: Willis is pictured with his wife Emma Heming in a social media snap
‘And for those of you who have been fortunate enough to not have any personal experience with FTD, we hope that you will take the time to learn about it, and support AFTD’s mission in whatever way you can.
‘Bruce has always found joy in life – and has helped everyone he knows to do the same. It has meant the world to see that sense of care echoed back to him and to all of us.
‘We have been so moved by the love you have all shared for our dear husband, father, and friend during this difficult time. Your continued compassion, understanding, and respect will enable us to help Bruce live as full a life as possible.’
The statement was signed by Emma, Demi, and his daughters Rumer, Scout, Tallulah, Mabel, and Evelyn.
Willis shares Rumer, 34, Scout, 31 and Tallulah, 29, with Moore, 60 to whom he was married from 1987 to 2000. He also has two daughters, Mabel, 10, and Evelyn, 8, with his wife Emma, 44.
FTD occurs when nerve cells in the lobes behind the forehead die and the pathways that connect them change.
The left temporal lobe is involved in the meaning of words and the names of objects. The right recognizes faces and familiar objects.
Symptoms are different from just the memory loss that is associated with Alzheimer’s disease. These may include; personality changes, such as becoming tactless, uninterested in others and unsympathetic, repeated and compulsive movements, such as continued use of certain phrases, hoarding and obsession over timekeeping, craving unhealthy food and forgetting table manners, speaking difficulties, including slow speech, grammatical errors and asking the meaning of familiar words like ‘bread’.
Bruce’s blended family issued a joint statement at the end of March announcing that he was ‘stepping away from the career that has meant so much to him.’
The statement revealed he ‘has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities.’
WHAT IS FRONTOTEMPORAL DEMENTIA?
Frontotemporal dementia (FTD) affects the lobes of the brain behind the forehead, which deal with behaviour, problem-solving, planning and emotions.
The left temporal lobe is involved in the meaning of words and the names of objects.
The right recognises faces and familiar objects.
FTD occurs when nerve cells in these lobes die and the pathways that connect them change.
Symptoms are different from just the memory loss that is associated with Alzheimer’s disease.
These may include:
- Personality changes, such as becoming tactless, uninterested in others and unsympathetic
- Repeated and compulsive movements, such as continued use of certain phrases, hoarding and obsession over timekeeping
- Craving unhealthy food and forgetting table manners
- Speaking difficulties, including slow speech, grammatical errors and asking the meaning of familiar words like ‘bread’
FTD is rare, making up less than five per cent of all dementia cases.
However, it is one of the most common forms of the disease in people under 65.
Sufferers are usually aged between 45 and 65 at diagnosis.
The rate at which FTD progresses varies greatly, with life expectancies ranging from two years to more than 10 after diagnosis.
As it progresses and more of the brain becomes damaged, symptoms often become similar to those in the late stage of Alzheimer’s.
These may include memory loss and patients relying on others to care for them.
Around 10-to-20 per cent of FTD patients also have a motor disorder that affects their movement.
This can lead to twitching, stiffness, slowed movement and loss of balance or co-ordination.
In later stages, such patients may have difficulty swallowing.
Around one-third of FTD patients have a family history of dementia.
And the condition is often caused by an inherited faulty gene from one of a patient’s parents.
Treatment focuses on helping a person live well by easing their symptoms.
This may include counselling or a speech and language therapist.
Source: Alzheimer’s Society
Announcement: The family revealed earlier this year that the legendary actor was retiring from show business as his disorder effects his ability to speak and understand language
Willis is perhaps best known for his role in the Die Hard series as John McClane
Screen star: Willis played a psychiatrist in iconic 1999 picture, The Sixth Sense (pictured with Haley Joel Osment)
Action: Bruce Willis was a hit in the 1994 Quentin Tarantino film Pulp Fiction
The full statement read: ‘To Bruce’s amazing supporters, as a family we wanted to share that our beloved Bruce has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities.
‘As a result of this and with much consideration Bruce is stepping away from the career that has meant so much to him.’
The statement added: ‘This is a really challenging time for our family and we are so appreciative of your continued love, compassion and support. We are moving through this as a strong family unit, and wanted to bring his fans in because we know how much he means to you, as you do to him.
‘As Bruce always says, “Live it up” and together we plan to do just that.
After the family went public with news of Bruce’s retirement, fans flocked to social media to share their love for Bruce.
Willis had reportedly been struggling with cognitive issues on the sets of his films for years – and even needed an earpiece to feed him lines.
A unnamed source told Page Six his declining cognitive ability had been an open secret in Hollywood as the actor repeatedly had trouble acting in his films.
The famed actor can even be seen in a scene in his new movie American Siege, which was filmed in 2020, wearing an earpiece. This was a full two years before the family’s announcement that Willis has aphasia.
Worries; Sources say Willis had been having trouble on the sets of his recent movies, and was even pictured wearing an earpiece to feed him lines on the set of American Siege in 2020
Last film appearance: Willis was reunited with his former costar Travolta, 68, in the action-packed film Paradise City – which was completed before he announced his retirement in March
Reunited one last time: Paradise City is the first major collaboration between Willis and Travolta in a feature film since they starred in Quentin Tarantino’s 1994 crime classic Pulp Fiction; seen together in a behind-the-scenes photo from the Pulp Fiction set
Willis had previously been seen using an earpiece to feed him lines in his Broadway debut in Misery in 2015, an unnamed insider also told OK! Magazine
He was also reportedly struggling during the filming of M. Night Shyamalan’s 2019 film Glass.
‘While filming Glass, staffers worked around him by cutting and editing and having him overdub lines because he struggled to remember and/or deliver them,’ they told the publication, according to the New Zealand Herald.
The retirement announcement marked an end to Willis’ decades-long career, during which he has earned a Golden Globe award and two Emmys.
Willis’ acting career began with small just roles in television shows like Miami Vice and The Twilight Zone in the early 1980s, according to IMDB.
He started gaining attention thanks to his starring role opposite Cybill Shepherd in the ABC series Moonlighting, which ran from 1985 to 1989, but his breakout role was really as John McClane in the hit film Die Hard, which premiered in 1988 and led to six sequels.
‘I think it was his first big film and he wanted to make it right, he wanted to make it work,’ co-star Reginald VelJohnson told People at a 2018 30th anniversary screening of the film. ‘He was more concerned with how to do the role rather than anything else.’
‘This was his first movie, and he was the star of a huge blockbuster and it was very well advertised that he was making $5 million, which at the time was unbelievable,’ Bonnie Bedelia, who played his wife Holly Gennaro McClane in the film.
‘And everybody was like, “Why would you pay $5 million to an untried movie star?” But boy, someone was really smart.’
Willis went on to star in films like Pulp Fiction, 12 Monkeys, The Sixth Sense and the superhero film, Unbreakable, for which he reprised his role over a decade later in the 2016 film Split and the 2019 film Glass.
Over the course of his four-decade career, Variety reports, his movies have grossed over $5 billion worldwide.
He has also appeared in a number of television shows, including the beloved classic Friends, for which he won an Emmy, and as the main voice actor in Bruno the Kid.
Willis has also recently completed multiple projects that are in post-production, including Vendetta, Fortress: Sniper’s Eye and White Elephant.
In November, Willis was reunited on-screen with his former co-star John Travolta in the action-packed film Paradise City.
Pals: Moore and Heming Willis have forged a close bond; the Ghost actress regularly spends quality time with Willis’ two youngest children during their family get-togethers
Reunited: In 2020, Willis and Moore made headlines after they spent four weeks in quarantine with their daughters, two of their daughters’ boyfriends, and her assistant
The film is one of the last that Willis completed before his family announced in March that he was retiring from acting after being diagnosed with aphasia.
The movie also marks the first major collaboration between Willis and Travolta since they starred in Quentin Tarantino’s 1994 crime classic Pulp Fiction.
Willis stars in the film as an aging bounty hunter taking on one of his most dangerous missions yet in Hawaii.
After he is shot and presumed dead, his son Ryan (Blake Jenner) teams up with his father’s former partner (Stephen Dorff) to hunt down his killers, all while dealing with a sadistic crime lord (Travolta).
Willis’ wife Emma recently posed with dementia specialist Teepa Snow, to share some of the progress she has made in dealing with the degenerative disorder affecting her husband.
‘I’m grateful I had the opportunity to work with (Teepa Snow) who has helped me add to my dementia care toolbox,’ she shared.
‘She’s a loving, compassionate and skilled leader in this space who navigates herself with pure empathy. She’s a gift.’
The former model then admonished others to ‘Head to the link in my bio as her website has a wealth of caregiving information you might find useful too.’
Teepa, a dementia specialist, is known throughout much of the world for the strides she has made in caring for patients and their families, according to her social media posts and website.
Willis’ wife Emma recently posed with dementia specialist Teepa Snow, to share some of the progress she has made in dealing with the degenerative disorder affecting her husband
Remarkable job: The licensed occupational therapist complimented Emma for her efforts, saying, ‘She has done an absolutely remarkable job of providing the right support for Bruce as his abilities have changed’ (Pictured in New York in October 2019)
The licensed occupational therapist complimented Emma for her efforts, saying, ‘She has done an absolutely remarkable job of providing the right support for Bruce as his abilities have changed and created a place, space and life that continues to provide him with what he needs to live well.’
‘Frontal temporal dementia is never easy,’ the healthcare provider explained, ‘but with the right programming and support, it truly is possible to continue living life.’
‘Congrats to Emma and their entire family for their very very hard work and dedication. It is truly remarkable!’
Many of Emma’s followers commented that the information they learned from Teepa and her Positive Approach to Care had helped them as well.
‘Honestly. I wonder if I’d be here without (Teepa)’ wrote one. Another enthused, ‘She is truly amazing, a leader on how to understand and truly care. I have admired her and practiced her teachings for years.’
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